Saturday, August 16, 2014

ALS #IceBucketChallenge

Hello Bari-Chunks Nation!  Thought I'd take a bit of a break from the opera world and talk about something serious for a couple of seconds - people dumping ice over their heads.  It's a serious problem in America.  Hundreds, if not thousands, are dumping ice cold water over there head while being recorded.  It has gotten out of control...

But seriously, this challenge is a good thing.  The purpose of the #IceBucketChallenge is to raise awareness and funds for a worthy cause, ALS.  Amyotrophic lateral sclerosis, also known as Lou Gehrig's disease, is very serious and fatal disease that affects 30,000 Americans.  It is a motor neuron disease that causes nerve cells to break down and die. There is no treatment or cure, and victims of the disease slowly lose control of their body.  It is not a fun disease.  My grandfather, Kenneth Albertson, passed away from ALS in 1985.  I remember as a young child, watching him slowly lose his ability to speak, walk, swallow food, etc.  It was not pretty.


Not enough is known about ALS.  The #IceBucketChallenge is helping to raise awareness about a disease that FAR too little is known about.  Many theories have surrounded about how the #IceBucketChallenge came to be, and why people are doing it, and whether you have to donate if you do the #IceBucketChallenge, etc etc etc.  But does any of that really matter?  A disease that gets little attention is becoming part of the national vocabulary.  People are now aware of this disease's name, if nothing else, and that's a huge step.  Plus, donations for the ALS Association are up $3 million dollars from the same point last year!  That's great!  Money=research=progress.  And for anyone who has seen this disease up close, any step is a good step.

People have also wondered why the #IceBucketChallenge is even relevant.  Well, ice therapy is a valid and helpful therapy for ALS patients.  You can store that info away for Jeopardy one day :)

Below are some of my friends and my #IceBucketChallenge's.  Being performers, some of these are pretty damn funny and feature members of the Bari-Chunk Nation.  I hope you enjoy, and maybe consider starting your your own #IceBucketChallenge or donating yourself.  It is a good cause.  
Kyle Albertson

Danielle Pastin

Corey Bix

Alissa Anderson

David Portillo

Sarah Beckham-Turner

Susanna Phillips

Will Ferguson


3 comments:

  1. My mom ALS (amyotrophic lateral sclerosis) symptoms started out with a "foot drop" on her left foot. From there her left leg lost all muscle tone and all the entire left leg muscles was almost gone. Also her fingers and thumbs "contract" at times. Left arm is losing muscle tone too,she have been suffering from amyotrophic laterals sclerosis (ALS) disease for the last seven years and had constant pain which really get us worried, especially in her knees, one day I was checking online for cure when I saw a testimony by someone on how he was cured by Dr Adam,so I contacted Dr Adam with the the WhatsApp number he included on the comment and my mom was cured we are so happy at the moment ,i so much believe that the only treatment for this ALS (amyotrophic lateral sclerosis) is Dr Adam,he has the perfect herbal remedy to all the Motor Neuron Disease including ALS.here is his email if you need his help adamokpoko@gmail.com

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  2. My first symptoms of ALS occurred in 2011, but was diagnosed in 2013. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Akanni herbal centre , It has made a tremendous difference for me (Visit www. akanniherbalcentre .com). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others. 

    ReplyDelete
  3. My first symptoms of ALS occurred in 2011, but was diagnosed in 2013. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Akanni herbal centre , It has made a tremendous difference for me (Visit www. akanniherbalcentre .com). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others. 

    ReplyDelete